M.E. support links

M.E. - WHAT IS IT? 

 M.E. is an acquired complex neurological disorder affecting multiple systems of the body. The body’s ability to generate and produce energy at a cellular level is seriously impaired meaning systems and organs cannot function properly causing progressive systemic deterioration.

Here a few snapshots from the internet:

Blogs:

I am one of the founding member of M.E. Advocates Ireland - see our blog for lots of information about ME in Ireland, personal stories as well as our advocasy efforts.

• A comprehensive leaflet created in aid of the M.E. Advocates Ireland
• Moira Dillon's Article about ME, published in Irish health.com
• Offerings from the Wellspring A creative blog by Theresa Doherty
• ME related posts on my blog,  for example living with ME is like having to re-invent myself every day , We need to tell our story 
• Blog about writing aids and tools

M.E. Explained on Youtube:

• The Golden Girls 'sick and tired'
• Fit to Fly DVD/Documentary was the brainchild of Irish artist David Begley. "In this documentary the artist Corina Duyn talks openly about her growth over the past years and how her journey (through M.E.) has informed her art making":  part 1  & part 2 The first video starts with a black screen, please be patient, the video proper starts in a few seconds)
• Radio interview with Sean O'Rourke (and my co-interviewee Sarah Meehan) from 10th June 2015 Youtube with images of my work
• Podcast about the This Ability exhibition which tells a lot about my life with M.E

Support for learning to live well: 

• Living Well with Pain and Illness. A hugely supportive book by Vidyamala Burch i
• IMET Relaxation Tape on 'youtube'. Working at relaxation skills is an important part of management
• Empower within guided meditations on for example: pain management and helping with sleeping empowered
• Yoga for ME / Chronic Fatigue: The Practice of Yoga
• My own books, especially Hatched a creative journey through M.E. and 'Into the Light'
• Dear Stranger by Anastasia Palmer, amazing wisdom from a very young girl.

Patient Support Groups:

• M.E. Support   A clear site with a huge amount of practical information  (my story )
• Ireland: Irish ME Trust or Irish me cfs. org
• Group for severely effected: 25 % me group