I 'watched' people unite.
I witnessed ill people who are most of the time stuck in their houses, on their couches or in their beds, come together and create a movement which is way beyond words.
People living with M.E. aired their voices in the most public of ways:
By physically attending the Millions Missing Protest in Dublin
Through the representation of family members - and even a surf board
Through social media
Sharing the poignant images about the day
Through radio interviews and newspaper articles
Through posting their shoes (or a stuffed penguin) to be displayed at the protest
Even a talk recorded live from bed (great one Noreen)
What an extraordinary time. And I agree with the words uttered by all those involved - and those who are too severely affected to be part of the organising - that this IS A TIME OF CHANGE.
Our wings may be clipped, but my goodness are we flying.
I look forward to hear more about what the politicians said to the protesters. I know that they all listened carefully, and that most know a family or friend, or acquaintances who live with M.E.
They have expressed willingness to listen. To help.
Maybe, just maybe, we have given these politicians the incentive, the permission, to do something to help their friends, but could not bring this to a political stage as it was too personal. (if you know what I mean)
I am immensely proud.
I know already said that, but it is true.
My body is telling me it is true.
And I listen to my body...
It is wiser that I am.
Although I was not at the event in Dublin, I spent a lot of my thinking energy, and computer energy on the protest. I overstayed my welcome on the computer to be part of that amazing day -to follow any bit of news that came our way. But you know what - it was worth every ounce of my energy!
Today I did listen to my body and gave it a lot more rest.
I am sure that when we have all rested our tired bodies and wings,
that we will continue with this truly inspiring of stories.
My deepest gratitude to ALL.
Further reading and links: