Showing posts with label care centre. Show all posts
Showing posts with label care centre. Show all posts

Sunday, September 28, 2025

My Creativity Archived

The past two and a half months has seen many ripples pivoting around my creative life. I have tried over the past few weeks to put the sequence of ripples into a blog post looking how my ‘creativity has been archived’.


It kind of started with Brendan O’Connor reading my letter on his radio show in mid July. It was like throwing a proverbial peddle into the sea. Since then I had various art and book reviews in newspapers, ‘In bed I cut words’ book made the shortlist for the CAP Awards, my previous work was shows in an online ME exhibition and I officially handed over my creative archive to Réalta Arts + Health Library in Waterford.


In the midst of it all I moved to another Care Centre.

See below for the story with links to further reading, if you so wish.  Thank you all again, as ever, to be part of this journey.


Photo taken after the handover of my creative archive 
at the Centre of Arts and Health, Waterford


The first pebble:

12 July: Brendan O’Connor -  RTE Radio 


In June I wrote to Brendan O’Connor in response to his newspaper column in the Sunday Independent ‘For poor Grace, there’s really no Place like home’ (20 April 2025) 

Brendan had wondered about the use of the word ‘placement’. ‘Would Grace not deserve a Home?’ His wording was brilliant, as always. 


I glued the article in my notebook and months later I wrote a letter, by hand, while in bed about ‘home’ and ‘care’ in response to his extraordinary column and posted it to the newspaper. I don’t read back, I don’t edit. 


Not long after I received this extraordinary email back from Brendan. Long story short, he asked permission to read my letter on his radio show. He did, on Saturday 12 July 2025. RTE titled the podcast: My name is Corina. I want to go home. Listen back on RTE Radio 




Brendan started with his own thoughts about the letter, but also with clear information about ME. Thank you!


The responses have been extraordinary. I received so many emails, messages, WhatsApp, messenger, Instagram messages, from friends, previous readers of my books, complete strangers, from ME advocates in Ireland, UK, America, personal comments from staff, residents and their family members.  What can I say. Other than Thank you for hearing me. For telling me your story. 


The Ripples: 

A few days after my letter was read on radio I had a meeting in my room at the nursing home with the Director of another Care Centre which has more people under the age of 65 with neurological illnesses. This meeting was organised by my Disability Case Manager (not related to the letter). It became one of the unexpected coincidental ripples. Tidal wave, almost.


22 July Book Review by Liam Murphy, Munster Express: In bed I cut Words

A week later my PA, my brother and I visited the Care Centre. It felt right. 

The same day a review was published by Liam Murphy in the Munster Express about my book. Another ripple. Two ripples! 

See below for transcript, or Facebook


Liam Murphy - Munster Express


28 July: Home


Shortly after the visit I trusted that the ‘Universe had Aligned’ and I took a massive leap of faith to be transferred to Mooncoin Residential Care Centre. I have again, a beautiful room. This time with view over the mountains which resembles the view I had at my home in Lismore.  It is peaceful and caring. A place for the next part of this challenging journey with my ME body. Home at sorts. More about this another day…





14 August: Little Wings Creative Archive Handover celebration 


I was invited for the official handover of my “Little Wings” creative archive at Réalta/Waterford Healing Arts. Again, this was already in the planning, but it kind of felt right it came on this current wave of ripples.

It was a beautiful gathering with Réalta staff and creative friends, some via video link. It was also very emotional. There is it: more than 30 years of my work in images, newspaper clipping, prints, books, videos… even a diary of the process which became the Invisible Octopus series. A beautiful display, a heartfelt event. To be honest, there were many tears, and not just mine… But I am also very proud. 


Creative supports

“I don’t want to rip the skies wide open, I just want my song to be heard” 

 Corina Duyn (From lyrics by Kris Delmhorst)


Watching the Fit to Fly documentary.
A glimpse back to 2005!
(If viewing on YouTube- there are 2 parts)


Abstract from Realta website:  

“… In addition to her boundless creativity, Corina’s attention to detail and her clarity of thought is evident in how meticulously she has recorded her process and catalogued her work.  Her generosity and bravery in sharing her innermost thoughts and her methodology are no surprise to us and to anyone who knows Corina, but will surely be a revelation to anyone who is yet to discover this extraordinary artist.   

Most of Corina’s work reflects her own life and living with ME but, despite decades of challenging health, it is clear from “Little Wings” that she has never lost her belief in the power of art to lift, to sustain and to transform lives.

…[the archive] is open to any artist, healthcare professional or arts + health practitioner. To book your place, please email info@realta.ie indicating your preferred date and time. Open Monday-Thursday 9am-5pm and Friday 9am-1pm.”

See also Arts + Health Instagram, LinkedIn, Facebook.


Online creatives support


15 August: CAP AWARDS shortlist


At the handover we obviously also spoke about ‘In bed I cut words’ and how to proceed next, only to hear the day after that it had made the shortlist in the Carousel Aware Prize for Independently Published Authors (The CAP for Indies) under anthologies.


Of course this book came about due to a beautiful collaboration with so many, see Book Page.


“…The CAP Awards are committed to acknowledging and promoting excellence in Irish independent book publishing, and are also a reader’s guarantee of quality; offering them fresh, new voices from independent authors combined with professional, high-level standards of publishing.”



The winners will be announced at The Carousel Awards for Irish Independent Authors in Chapters Book Store in Dublin on the evening of the 10th of October 2025. 


If you can please attend this celebration - for me… For details and access information please contact info@capawards.ie 


29 August: Dungarvan Leader: “Artist And Writer Corina Duyn Recognised For Latest Book”
Journalist Jo Bell wrote a full page article about the short list of the book in the Dungarvan Leader  
Including interviews with David Murphy from Red Heaven Design  who created this book of beauty and Katherine Collins from Creative Waterford who funded and organised the reprint in paperback. 


  


A small amount of copies are available from myself . Further Availability of the book will be announced after the award event.



31 August: Sunday Independent, Culture & People supplement. ‘What lies beneath’ art column by Niall MacMonagle: “A fearless artistic voice refusing to be silenced”



One of the first collages I ever made, probably April 2022, I used the Niall MacMonagle’s art column title: What lies beneath. Three years later, he wrote a short history of my long creative life in his art column. What a lovely ripple…


"My creative brain will not be silenced," she says. Her epigraph to In Bed I Cut Words reads: "In bed I cut words until I can rest in a world where loss and pain live alongside beauty and hope."


See newspaper link for full article, or at bottom of this blog.



Huge Ripples for anyone with ME in Ireland, possibly even abroad:


With the involvement of my fellow ME Advocates our national health service in Ireland, the HSE, has shared the ME clinical guidelines project on their website! A massive moment.

“The guideline will be informed by international evidence, models of ME care, clinical experts, and people with lived experience of ME.”

Thank you, thank you, ALL involved to make this happen.


LET ART BE A WAY TO WITNESS AND REMEMEBER.  

Moira Dillon from ME Advocates Ireland (MEAI) created the second online exhibition with works by people living with ME. This time on 8th August - Severe ME Day. The exhibition shared the art created by 31 artist with severe ME from all over the world: LET ART BE A WAY TO WITNESS AND REMEMBER.  

An extraordinary document. 

Jo Bell highlighted in a full page article in the Dungarvan Leader 19 September. “Raising awareness of severe ME - Lismore artist and writer Corina Duyn participates in online exhibition”


From the article:

Moira Dillon, who herself lives with ME:

…” "The online art exhibition offers a poignant insight into the lived experience of Severe ME - a glimpse into that hidden world. The artworks presented reflect not only the suffering associated with this disease, but also the courage, resilience, and humanity of those affected. Each piece of art, whether created by those with Severe ME or their caregivers or supporters, reflects the inner lives of people too often unseen and unheard." 


Corina: "… [It was] an huge honour to be part of this mind altering exhibition. I believe art is the most powerful way to share our often difficult to comprehend illness. Many of us live hidden from society. The public's view of ME can still be one of ‘tiredness'.

This illness is indescribable in words. Images often go straight to someone's heart and mind and stay there to 'dissect', to ponder."




The sea is gently dispersing the ripples…


Creativity, or the creative thought keeps my mind afloat. I can’t say I am making anything other than trying to write in my diary, and the occasional trial with watercolour brush pens (thanks Sue), or look at autumnal life in the central garden. 

I have ample time to reflect on the journey I made, and continue to make, shared with you all via my creative mind. At times the reality of day to day life with ME is a different story than my (social) media shows. But that might be for another day.

For now let’s celebrate my creative mind.


BE WELL!


Corina

September 2025



If you like to read the recent news paper articles, they can be accessed at the Art Archive. And here are two art reviews in words:


Review by Liam Murphy of my book ‘In bed I cut words’ appeared in the Munster Express, on 22 July 2025 in his ‘Expression’  column.

(Words shared with permission)


“Corina Duyn is an inspirational artist and a creative, and recently she published another attractive book, In Bed I Cut Words. This time, a paperback edition of her earlier hardcover edition, designed by David Murphy at Red Heaven Design. This book is a poignant yet powerful expression of an artist's response to life with Myalgic Encephalomyelitis (ME), a condition she has lived with for twenty-six years.


This newspaper has been reviewing Corina's work for over twenty years. During this time, she produced puppets and illustrated beautiful books to tell various stories, thereby establishing her artistic reputation. She made her first rag doll at the age of ten, which led her to become a puppet designer and maker, writer, and visual artist.


Aged thirty-six, she was diagnosed with ME. Corina was finding ways to cope and continue her artistic vision. She was unshaken in her need to make art and still believes "there is always a way".


Since 2021, Corina has been living in full-time care at Signacare Nursing Home. Waterford Healing Arts and Creative Waterford connected her with artist Caroline Schofield. This led to a wonderful and groundbreaking 2023 exhibition at GOMA, titled 'I Brought The Dream Of Flying'. This was a triumph for Corina's determination, persistence and resilience.


As her physical ability weakened, she produced collages, mostly from her bed; the title strikes home: "In Bed I Cut Words." This book will evoke pain and anger, but what shines out most is the work of an artist whose limitations will not defeat them. The photographs in this book illuminate the inner beauty of art and expression under challenging conditions. The work is minimalist but powerful, and the stoicism does not hide the frustration, the battle with 'imprisonment' of the artist within the person and within a care setting. There is grief and pain, but there is also achievement, glorious, radiating art making at all costs.


Corina's poem strikes home: "In bed I cut words until I can rest in a world, where loss and pain live alongside beauty and hope".




Art: What Lies Beneath. NIALL MacMONAGLE

“A fearless artistic voice refusing to be silenced” see also

 

Artist Corina Duyn: ‘Puppetry forced me to look deep into the reality of my illness


 A photograph of Corina Duyn, aged three, shows her pencil in hand, totally focused on what she is drawing. Aged four, she made a scrapbook containing cut-out wrapping paper graphics.

Last year Duyn published In Bed I Cut Words - what she describes as "a scrapbook of sorts" containing recent artworks, collages and her sculptures. She has been making and creating her whole life.


From Beverwijk, in the Netherlands, in her late teens Duyn moved to Haarlem, "full of art, music, galleries, museums, an alternative jazz club. My parents and five siblings were all creatives in different ways.


"My dad was a coppersmith, [but] worked in a factory to provide for his family. I think it broke his heart. Just before he died suddenly at 59 - I was 14 - he was working on a model of the HMS Bounty and I inherited his attention to detail.


"We made our own things. My mother made our clothes. We made do with what we had. I still do. I had my own little hand-operated sewing machine, made dolls clothes and, aged 10, made my first rag doll. That was the start of my interest in dolls and puppets.


"My father had given me a set of a hand mitre saw and hand drill and I used this to create my first puppet a year after he passed away."


Art wasn't part of Duyn's schooling. "We did cross stitching and sewing and I was told I was too meticulous and thus too slow." And though she would, have preferred to study art and culture, she says: “I trained as a nurse-carer and studied social care while working in a group home with adults with intellectual disabilities."


She loves puppetry. "Puppets have a freedom when animated" and Duyn realises "puppetry forced me to look deep into the reality of my illness”. Art, once a hobby, "became my work after my move to Ireland".


She came in 1989 for six months and returned a year later for good. As caretaker of Dromana House, Cappoquin, Co Waterford, she began her Fantasy Folk Artist Dolls, had a home studio, big corporate commis-sions, several exhibitions and taught puppet making.


But 27 years ago Duyn's life changed dramatically.

"Illness - Myalgic Encephalomyelitis (or chronic fatigue syndrome), ME - changed my life overnight and four years ago I had to, sadly, give up my independent life at my lovely home, garden and studio to live in care” But she continues to make art.


"My creative brain will not be silenced," she says. Her epigraph to In Bed I Cut Words reads: "In bed I cut words until I can rest in a world where loss and pain live alongside beauty and hope." 

Waterford Healing Arts supports Duyn's work and since moving into care, Duyn, in collaboration with artist Caroline Schofield, created this sculpture, Unspoken Words, using papier-mache, petals, leaves, feathers and a gifted necklace.

"It tells a story of my creative life, before illness, through illness and life in care. No longer able to make collages - my brain and hands did not co-operate - I had packs of collected words shredded, would take a handful, mixed it with glue, stuck it on the head." Duyn calls it "tum-bling-of-words hair". 


Unspoken Words contains many memories. "Memories of teaching before I became ill, and hidden stories. I am always looking for ways to bring ideas into being."

Sunday, February 12, 2017

Dzogchen Beara Care Centre

For the past week I have written about my stay at the Dzogchen Beara Care Centre, West Cork, Ireland. Some of you have asked for further information about accessibility, costs, and about how the centre will help someone living with illness. This post will look at all those questions. (A long post, but maybe just go to the section you are interested in). I hope it is of help, but feel free to contact me, or of course anyone from the Dzogchen Beara team with further questions.

View of cliffs and see, and stunning sunrise from Dzogchen Beara Care Centre
View from Dzogchen Beara Care Centre
Just a note... you don't have to be ill to be staying at the Care Centre. It is a beautiful location to just restore your batteries. Or use it as a base to explore the Beara Peninsula. Better than any hotel. Not just my words, but that of many other guests. And you don't have to be a Buddhist or be into meditation either to be visiting or staying at Dzogchen Beara.

How I initially got here

After years of a slowly improving well being from ME/CFS my health started to decline again in 2012. After almost two years I felt I had lost all the ability to find my way out again. Getting ill first time round, there is still that sense of hope of recovery. To have to do it all over again, I simply felt I was stuck. Stuck in how to move forward.
I needed to find my balance again. I thought that maybe a week or so away from home, in a place that could provide some healing- some understanding would be a good idea. I explored such places on the internet and came across the Care Centre at Dzogchen Beara. (Then know as the Dechen Shying Care Centre). I had heard of this place from a few people over the years so started to look into it a bit more seriously.

Dzogchen Beara Care Centre conservatories of private rooms
Dzogchen Beara Care Centre conservatories of private rooms

I booked my stay at the Care Centre during March 2014. What I found was an amazingly kind, warm, friendly, supportive and accessible place. With stunning views to add to the 'package'. I was hooked within hours... (See Extraordinary Generosity link at bottom of page).

I have been back several times since. Partly with the help of a Rehab bursary to work on my book Into the Light which was 'conceived-born- and launched at the Care Centre.
During last week's residency, I wrote a daily blog about my experiences and thoughts.


I have only ever stayed at the Care Centre so can only tell you about that. 
There are 7 rooms at the spacious Care Centre, a large open communal kitchen, a family room, and the most beautiful meditation room. 
For other accommodation at cottages and hostel (and many courses/retreats) see Website.
Dzogchen Beara Care Centre wheelchair accesible rooms
Dzogchen Beara Care Centre wheelchair accessible rooms

Care

  • Although it is a Care Centre, it does not mean that personal care is provided. If you need a carer, you need to bring someone along.
  • What they do give, is their warmth and support in whatever way they can.
  • There is the option for one-to-one spiritual care during your stay. This is not counseling, but a supportive chat to help find ways to deal with for example acceptance. I have availed of this during all my stays here and have build up a relationship of care and trust with John, one of the  support members.
  • There are weekend and week long retreats too, which deal with loss and grief and meditation. See the website.
  • The vision of this centre is from the Tibetan Book of Living and Dying
Dzogchen Beara Care Centre wheelchair accesible rooms
Dzogchen Beara Care Centre wheelchair accessible rooms
Wheelchair Accessibility rooms: 1, 2, 3, 4

  • The whole building is spacious, bright, warm and fully wheelchair accessible.
  • Rooms 1, 2 and 3 have two have two single beds, of which one is a high-low bed.
  • Room 4 has a low, small double bed.
  • These four rooms are fully wheelchair accessible, with wooden flooring, wide doors, and plenty of sockets for charging wheelchairs or scooters or other equipment, and have plenty of space to move around in.
  • Fully accessible bathrooms, with grab-rails and wet-room showers.
  • Room 1 has grab-rails on both sides of toilet; room 2,3,4 has only a fold down grab rail on the right of the toilet. (Right side, as in seated on the toilet, with a ledge on the other side to lean on)
  • There are shower chairs/seats available on request.
  • There is a manual hoist available.
  • These rooms also have a private conservatory attached to the rooms, which are spacious, and have a recliner chair and other furniture.
  • My experience is that furniture can be re-arranged to suit your specific needs.

Room 5,6,7
  • These rooms are at the other quieter end of the building. They are smaller and don't have 'wet-rooms'. They do have the views of the sea.
  • Those who need a carer to accompany them on their stay at the Centre often book one of these rooms for the carer (as extra room)

Food and kitchen
  • There is a large communal kitchen, where guests can sit together and have a chat.
  • The counter and cupboards are normal height. 
  • One low level drawer has cups, plates etc accessible for wheelchair users.
  • There are two fridges, and a freezer. One fridge is for general use. The other is for guests own foods.
  • There are teas, coffee, biscuits and etc provided. Self service.
  • Self catering breakfast is included. There are cereals, milk, bread, eggs is in the fridge and cupboards.
  • A large delicious vegetarian lunch can be ordered (€10)  and eaten at the Shrine room. But as this is a little tricky to reach by wheelchair (steep hill), lunch can be brought up to the care centre.
  • Diets are catered for in terms of the booked lunch. Ask in advance of stay. But do bring your own dietary foods with you!
  • You can do your own food too. Bring supplies!
  • If you need support, bring someone along.
  • Shops are far away, so do bring plenty of snack and other foods if you do not intend to leave the building for the duration of your stay.
  • For me the lunch is big enough to be my main meal of the day. I bring frozen soups from home for at night.

Meditation

  • In the morning at 9am there is a guided meditation at the Shrine Room. Which is located down the road from the Care Centre. This is open to anyone.
  • As the Shrine Room is not easily to get to by wheelchair, they kindly offered to move this meditation up to the Meditation room here at the Care Centre during my stays. This way, I, and other guest with mobility impairment are able to join in in the meditations.
  • To me it is a beautiful way to start the day.
  • At 3pm there is a Loving Kindness meditation, again at the Care Centre Meditation room.
  • Both these meditations are free and open to everyone who stays,  or visits Dzogchen Beara for the day. 
  • These meditations are guided in such a way that they are open to complete Beginners and the more experienced in meditation.


Cost


Wifi. No-wifi

  • Just a note for people hooked or reliant on their phone, there is very poor phone reception, so you are (wonderfully) cut off from the world. Very peaceful.
  • There are a few location on the grounds (near car park) where there is most reliable phone reception. Occasionally there is reception in the building. Occasionally.
  • There is no wi-fi.


Outside

  • The Dzogchen Beara complex consists of a series of buildings, stunning paths, trees, ponds, and a gorgeous little cafe/bookshop, walks and a meditation garden.
  • The road is narrow so can be a little tricky to feel safe on on my mobility scooter.
  • And it is steep.
  • From the cafe down towards the Shrine room and meditation garden it is Very Steep.
  • Staff suggest to Not go out on your own if you use a wheelchair or scooter. They prefer to walk alongside you, especially on wet days. Or when road and paths are wet from previous rain.
  • For walkers, there are some lovely walks and views to explore.


Beyond Dzogchen Beara

  • The Beara peninsula is just beautiful. It is worth a trip out for the day. 
  • There is a wheelchair accessible taxi available from Castletownbeare. They can provide a trip around the area. Staff here can tell you more about that.


What this place means for me and how I use it.

For me this place means a break from the daily routine.
A different location.
Meeting new people.
A place where I can simply BE.

I find peace and acceptance.
And an amazing place to create. A few sculptures saw the light of day here, and my Into the Light book was formulated and launched here.
sculpture in the making at dzogchen beara care centre by ME/CFS artist Corina Duyn
sculpture in the making


I have build up a routine during my stays, and now know what I would need to make my stay easy. I contact the centre in advance of arrival. When I get here, my room has been set up for me, for example a small table is placed in the conservatory to sculpt on...

I rest a lot.
I sleep a lot.
I hang out in the recliner in the conservatory. Looking at the glorious views, or listen to the wind and rain...
I don't listen to the news or watch tv.
(There is a telly and videos in the family room - also books, and a radio in the bedrooms.)

If you book for the first time, and have requirements, and questions, please make sure to make contact the centre in advance.



I hope you will make a trip here some day.
I recommended staying for a few nights at least. It takes me about two or three to feel ok after the journey and to settle in. And to settle into the beauty and silence.

I love it here!
But you properly gathered that already...


Links and further reading