Wednesday, December 16, 2015

ME and CFS support links

M.E. - WHAT IS IT? 

MYALGIA = Muscle painENCEPHALOMYELITIS = Inflammation of the brain & spinal cordM.E./C.F.S. is an complex and debilitating physiological illness involving neurological and endocrinal dysfunction and immune system dysregulation which is not improved by bed rest and can worsen with physical or mental exertion. Those affected also complain of many other related symptoms such as fever, sore throats, painful glands, muscle weakness, headaches, joint pains, sleep disturbance, confusion, irritability, poor concentration, and others. (from IMET website)

Here a few snapshots from the internet:

Blogs:

Books 

  • Recommended by one of my readers by Dr. Myhill's book DIAGNOSIS AND TREATMENT OF CHRONIC FATIGUE SYNDROME AND MYALGIC ENCEPHALITIS 
M.E. Explained on Youtube:

  • The Golden Girls 'sick and tired'
  • Fit to Fly DVD/Documentary was the brainchild of Irish artist David Begley. "In this documentary the artist Corina Duyn talks openly about her growth over the past years and how her journey (through M.E.) has informed her art making":  part 1  & part 2 The first video starts with a black screen, please be patient, the video proper starts in a few seconds)
  • Radio interview with Sean O'Rourke (and my co-interviewee Sarah Meehan) from 10th June 2015 Youtube with images of my work
  • Podcast about the This Ability exhibition which tells a lot about my life with M.E.
Research and treatment 



Support for learning to live well: 

Patient Support Groups:

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