Thursday, July 20, 2017

A set of cards to support people living with chronic illness

An M.E. buddy Ricky Buchanan created this wonderful set of 'Energy-Saving Self Care Cards'. With a  few words of realistic goals for chronically ill people, even those who are housebound or bed bound, like Ricky herself.
'Energy-Saving Self Care Cards' by Ricky Buchanan

"Cards have been sorted into three categories - "Internal" cards have suggestions that are all in your head. "External" cards for things you can do in the world, and "Sensory" for suggestions that cater to your five senses.


They fit in the palm of your hand, like a deck of playing cards.


The set is available HERE. The order arrived within about ten days.
A few of the cards, including one of the blank ones
to write your own thoughts o


Maybe, if others in Ireland are interested in getting a pack, it might be an idea to order several sets to be posted to the one address. It would cut the postage costs.

Well done Ricky!
I love them.

links:



Wednesday, July 19, 2017

Puppet making workshop

It has been a while since wrote my blog...

Writing time on the computer is limited. Like anything else in life, priorities had to be made.

As you might have read, for the past while I had to dig deep to find my balance again. To find the trust again in who I am as an artist and writer living with chronic illness.

I dug deep. Literally in the soil of my garden, and metaphorically in my being.
Sorting what could go: plants, stuff, weeds, people, thoughts, situations. I looked back at what works for me, where my life's interest are, and being (somewhat) realistic where my capabilities lie. Anyway, I know that all of this was to make space for new adventures.

The Life Outside the Box Puppet project, which I facilitated a while back with my fellow members of the Irish Wheelchair Association (IWA), is a project dear to my heart. I loved working with my fellow members. To see them grow in confidence. To explore how they could make the puppets. To be part of the laughter. The joy. To see how to project was welcomed outside of the IWA. Out in the community.

I am ready to see how I can develop my ideas further, also in practical terms. I have made some amazing creative contacts of late, who have all supported me to make this next step. The Puppet Symposium in a few weeks, is a wonderful opportunity to make valuable contacts in this new field of research. And have applied for a Arts Participation Bursary from the Arts Council.
I am stepping out of my box. Out of my cocoon.

SO...
And I am excited to say, that I am getting my studio, and mind, ready to welcome my first three puppet making students. We are starting in a few days!

Ready for the first puppet making workshop
supervisors
puppet in the making... (with walking sticks)
this is how it will all begin
The Little Wings Studio

See more about my projects, and ideas, HERE

Monday, July 10, 2017

Hiding in my writing cave


I am about to hide away in my 'Writing Cave' for the next while, as I have two Art applications to fill in, and a paper to prepare for the Broken Puppet Symposium.

One application is due this Thursday.
Ahhhh.
And I only found it yesterday, but it seems to right up my street: "Arts Participation". So am going to give it my best.
The other application is due next week. It is short, and almost written: "An expression of interest for Art Commission for the New Children's Hospital in Dublin."
Then before the 2nd August I have to write, and prepare for the talk at the Puppet Symposium.
papers to write, applications to fill

All in the line of progress.
All connected!

And didn't I write the other day that you can make anything by writing...?

So, if you don't see much of me, I am most likely hiding in my writing cave.

But first today, I am going to spend an afternoon with other creatives.
Painting.
Something I have not done for years, (painting I mean), but for some reason the wish to paint came up during my visit to Holland.
I try to listen to those whims!

Getting my 'travel basket' ready for the painting afternoon

See you all when I can.
Be Well!


Saturday, July 8, 2017

you can make anything by writing

I am still out of sorts
but sorting myself out

... these were the words which appeared on my diary page this morning. I am still out of sorts, but sorting myself out.
I left it at that.

I seem to be still in the process to re-establish the me in my life, after the busy and at times confusing few months. 
Clearing helps. Clearing my garden was so powerful. And am now in the process of more tidying in my house. Again... An ongoing project really. 
I seem to have the need to move things around (and in the process, moving energy around...
And to dispose of stuff. 
Tidy my books. My desk. My studio. My space. My head.
puppet Johnny Dwyer by Corina Duyn sitting on a box in front of bookshelf
Johhny Dwyer overseeing the tidying of my study.
I know that this is all in preparation for good things to come.
I also cleared some people out of my life (metaphorically speaking of course) and invited some others to join me on my journey. Mostly creative people.

So, while I tidy up my life, I am getting ready for new adventures.
Creating.
Teaching.
Writing.

To reflect on C.S. Lewis's wise words which I have written on Puppet Johnny Dwyer's travel box... "You can make anything by writing."

Writing words in my diary, sharing my private thoughts which seem to flow from my pen onto the clear space in front of me. Sharing the challenges, the joys, the hopes and desires. To make plans. All in the safe place between pen and paper. I never stop marveling of the power of this excersice.
Creative ideas come into focus. But also life in general.

I can make anything by writing.

wooden box with a drawing of a hand writing the words: "You can mande anything by writing" C.S. Lewis
"You can make anything by writing"
C.S. Lewis
Cover of Johnny Dwyer's travel box
Be well my dear friends.
Wishing you a lovely weekend!
And maybe... find a lovely notebook and most comfortabel pen, or embark on a space clearing exercise... a few minutes at the time.

Wednesday, July 5, 2017

Closing, and (re)opening doors

Yesterday was one of those days...
It started off with the challenge of pretty bad fatigue accompanied by pain. Inflammation of some sort? Anyway, the way brightened as it went its merry way.

Post arrived

I am still a great believer in the beauty of receiving post via the letterbox.
A letter accompanied by printed photos. Thanks Moira.
page from Hatched

And a letter with an appointment for the MRI. At last I have been given a landing slot and can stop circling the skies. It is even in time before my appointment to get the results from the neurologist. (I had appointment for result, but no date for test). Logic, it seems, has prevailed. Or perhaps the stern letter from my GP worked. Whatever the case, I have an appointment. I hope of course that is it 'just ME' or old age setting in, and not something else to scare me. But whatever comes up, it is already there. I just don't know a name for it.

Closing one door

To clear the way to follow my desire to teach again, as I wrote the other day I decided on closing one door, to be able to have energy to open another.
I would dearly like to find ways to facilitate puppet workshops with people and groups in them community. To reach out to people who could benefit from being involved in the creative process. The puppet project (and similar I had done, prior to illness, with teenagers in a group home) brought the value of this clearly into focus. As teaching would take a great deal of my energy, I decided that I can no longer go to the Irish Wheelchair Association (IWA) resource centre. (It is there where I facilitated the Life Outside the Box Puppetry project.) I have been going to the centre as a IWA member for a few years, but feel it is time to move on. It is not a place I can further grow. And teaching, I know, would be my one big event in the week, so I closed the IWA Resource Centre door today.


Opening a door to the past

As it happens, as life seem to happen in its peculiar ways, soon after I emailed my letter off to the IWA, a young woman from Finland made contact via Facebook. The name rang a bell... She and her friend were my students shortly before I became ill in 1998. They were about 17 at the time and stayed with me for a month to learn the art of doll making as part of their art college course in Finland. We did not have contact for at least 17 years.
So here I am, on a day when I make a firm commitment to myself to go back to teaching puppetry and Doll Art, in some shape or from, whatever is practical and workable, I hear from one of the last people I taught before illness changed my life. Sari did not become a Doll Artist, her friend Anna did. Sari sounded happy in life.

Opening new doors

So, whatever way this teaching will happen, I am ready to listen to the universe. I am ready to explore and be guided in how, and where I will continue my journey.


Tuesday, July 4, 2017

Tired


These are just a few short observations/ poems from 2001, as featured in Hatched Re-Hatched.
However, I still moments in the present time in which I can relate to them, ...  more than I wish to acknowledge. However, the emotion and the wisdom surrounding this has changed. The experience remains raw.
I know I am not alone in this...

Be well my heroes.
Hang in there.
There will be better days.
I promise.


HEAVY WEIGHT 25 January 2001

Confrontations 
with my tired body
Lowering my head
just above
the bowl of porridge
my hand
and spoon
thereby
greatly reducing 
the distance
have to travel 
to my mouth




page from Hatched (re-hatched) by Corina Duyn 2006




WATERSHED
15 March 2001

Nearly in tears  
deciding
if taking a shower 
would be 
a good use
of energy 



DUCK OUT OF WATER 
23 September 2001

Negotiating 
door saddle 
kind of 
tired

Monday, July 3, 2017

Puppet Power

Yesterday I had a visit from a creative friend.
She brought her doll she has been working on for a number of years, in the hope I could guide her on the next step to bring it into being.

After lunch we made it into my studio.
view from my studio
I took up position on my 'home-made-recliner-window-seat' while Pascale sat at the work table. 

the window seat- made from an old shelf unit.
It was lovely just to BE in my studio and looking out at the birds in my garden.
And to just chat about creative ideas. Where to go from here.
I did not feel the need to do any work. I did not really have the energy.

What I DID do, was to take a new Pasta maker  (see below) out of the box, to see if it really would work to make thin sheets of clay for future projects.
It did!
And when I put the thin sheet of clay in the 'spagetty' part of the machine, it made this wonderful "hair", which I deposited onto a head I had made a few years ago.

Who knows, 'it' might be made into a puppet one day, now it is sporting a new hair-do.


Hair!
Playing with a pasta maker
The teaching of making puppets, and the healing aspect of this, is one of the things I would like to focus on in the near future. Preferable teaching in my studio (but open to other suggestions), so I have all materials at hand, I don't have to pack boxes, or think too far ahead in terms of what I need to bring.

This idea follows on from the "Life Outside the Box" Puppetry Project. An inclusive Art Project I facilitated with fellow members of the Irish Wheelchair Association. 

The project was much more than just having a bit of fun. It brought many of the makers out of their comfort zone, in a good way. We explored our personal boundaries and that of society. Through the puppets, we as people living with disabilities, became parts of society in an unexpected way. 
Our project explored boundaries imposed by society. And as a result, the end product- a set of puppets and a film, were seen by many: in exhibitions, at a disability film festival in Canada, in the local cinema, in many news paper articles, and on national television. See the film we made, and the project in more detail on this Puppet Blog. It brought a discussion about. Beautiful.

Also as a result of this project I have been invited to give a paper at the upcoming The Broken Puppet: A symposium on puppetry, disability and health. 

I hope to build on this puppet-power, by working with other groups of people.
Preferably in my studio- a group up to 4 people is maximum.
If interested- please let me know.

Or is you are reading this and would like to explore if I can teach in another location, and with a larger group of people, and can provide the necessary support, I gladly hear from you.

But for today, the limelight is on Pascale's doll in progress... who in a way solidified my thoughts on doing puppet workshops. Thank you!
Visiting doll 
surgery
Belly- Button!

... home again, and sitting much more upright
with more confidence and pride.
for illustration only, this is the
pasta maker I mention-
a brilliant tool for the studio

Sunday, July 2, 2017

The root of sorrow is craving, but there is always hope to see the bigger picture

The root of sorrow is craving.

Antony de Mello - Awareness 

potbound Aloe Vera

Three weeks of recovery from the 'hospital-Holland-marathon', and I seem to be finally completing the road to re-connect with the person that I thought was me.  Both the hospital and travel had a rather big impact on my mind. On my beliefs. On my physical, but also mental well being.
I became aware of a sense of loss. I realize that the sorrow, the sense of loss, were based on what I perceive I do not have.

"Ghosts of lives you might have lived ... If not becoming ill ..."
Hilary Mantell. Learning to talk.


I wanted to be like my siblings, who are walking, cycling, working, able to stay up late and rely on their working brain, be sociable, and not having to go to bed at the same time as the 4-years-olds... I became much more aware of my life with illness.  Of course they have their challenges too. Everybody has. I just needed a little time to make sense of it all again. To put 'everything' back into perspective. I needed to hope again. And to see the bigger picture.


"Waiting with a resilience of spirit, in the certain knowledge that, 
if we wait long enough and if we are true to ourselves 
then things will make sense, is waiting in hope."
Sister Stanislaus Kennedy. Gardening the Soul 


The happiest place I could be these past few weeks was in my garden. Touching the earth. Grounding myself. Clearing, re-arranging my garden and my thoughts.

"If we lose touch with our sources, we are in danger of losing hope. 
That is why it is so important to stay close to nature, to listen to the trees and flowers, 
potatoes and hedges, shrubs and bulbs grow in silence.”
Sister Stanislaus Kennedy. Gardening the Soul 


Although yesterday was mainly spend recovering from outstaying the welcome in my garden the day before (weeds are more difficult to remove from gravel than it is from soil... trust me... ) I also had the great fortune to have a lovely meeting with an other creative being.

A creative meeting about possibilities for my work. Where to go from here.
To see the bigger picture of years of creating, and learning. A meeting in which minds were aligned, and experienced support, from a clear, open and honest mind. A chat which gave me hope and direction, and in which I saw my work through someone else's eyes and experiences. It also brought a possible new meaning of the project I have been working on for over a year. I am so glad I did not cancel that meeting because of the challnges of my body that day!

small figure in cocoon, sculpture by ME/CFS artist Corina Duyn
Life-Dance - work in progress

I might not be able to walk much, or cycle, or stay up late, or garden to my heart's content, but I have hope. Hope with a capital H. Which is ultimately linked with Trust.
Trust that all is well. And that I can see the biger picture of my life as it is.

I am grateful to have spend so much time in my garden these past few weeks. To reconnect with nature, with Mother Earth.
And to have taken the time at making sense of own little world again.
To observe what I value most. And... where I don't want to be. And where I can possibly go from here. To have reconnected - even it is just through talking about- and not quite doing- with my creative life.

Grateful to have taken time to reconnect with me again, not just with the capital letters M.E.


I truly hope that you, my dear readers, are well. 
And are finding hope, with a capital H, in your lives.
Thank you so much for your continued interest in my musing.
Be well.