Tuesday, July 6, 2010
Is M.E. for real?
A day of contrasts... to say the least.
I received a book in the post "Lost Voices- from a hidden illness". A book about young children and adults severely effected by M.E. Later I went to the library and was given a DVD that was made in 2004 during the launch of the Fit to Fly DVD. Re-living that day, made me swing from pride to distress and back again.
To add some fun to the day, I brought a visit to the M.E. centre at Second Life. After reading about an autobiographical novel written by a person with M.E. 'The state of me' I went looking for the beach to relax. On my way, I came across a trampoline.
There I was jumping to my hearts content, (without getting pains all over my body that would last for months, as after my last real trampoline adventure) another avatar joined me. She didn't jump, but asked for an introduction.
I was asked if I was a lecturer, or a visitor. I told her about M.E. and that I come here to do the things I can't do in real life.
To my absolute horror, she responded "is M.E. for real?"
I did get an apology, but it still leaves me rather horrified...